Questions marked with a * are required
A survey for people struggling with dry eye
This survey is designed to (a) validate and contextualize your experiences; (b) inform, educate and inspire you about concepts and strategies that you may not have come across; and (c) gather data to inform and prioritize research about unmet needs of people with dry eye disease. 

This is an online survey, but if you would prefer a hard copy that you can complete and mail to us, please contact the Foundation at 800-484-0244 or email survey@dryeyefoundation.org.
 
What to expect
PART 1 is about your personal dry eye profile. It includes an inventory of your dry eye symptoms and their patterns; how dry eye affects your quality of life; and information that can help explain your dry eye, such as diagnosis, co-morbidities, causes, clues and risk factors. 
 
PART 2 is about your dry eye problem-solving history. Most of us have tried a lot of things. We will be asking about all the treatments and remedies you have tried and whether or how much they helped; about your experiences with eye doctors; and about what dry eye means to you financially. 
 
PART 3 is where we connect the dots, look at the big picture of where you are at and provide a framework to help identify some future steps to take. 
 
Tips
HOW LONG WILL IT TAKE? We recommend planning on 45 minutes, but it depends how much you choose to share. There are 108 questions, 25 of which are optional. Most of the required questions are multiple choice or straightforward ratings. We provide many optional "Share more about..." opportunities. 
 
SAVE & CONTINUE: If you find yourself running out of time, or just prefer to take this process one step at a time, look for the link at the end of each page. Make sure to complete all answers on the page first. 
 
LONG FORM QUESTIONS? For those of you who choose to respond to the open-ended text form questions, we recommend jotting down your answers in a text document and then pasting them into the survey. There's just nothing quite like that sinking feeling you get when you type a long answer into your screen, then accidentally click on the wrong thing and lose it all!

Consent
By completing and submitting this survey, you are granting The Dry Eye Foundation unlimited use of your survey responses (without any personally identifying information) for all research purposes compatible with the mission of the Dry Eye Foundation, that is, to alleviate suffering for people with dry eye disease.

Privacy policy
What personal data we collect
We do not collect any personally identifying information other than email addresses. 

Why we are collecting it
We need your email address in order to send you the results of your survey, and in order to recover partially completed surveys for you if necessary. We also provide opportunities to opt in to our mailing list for notifications about publication of survey results, volunteer opportunities, and future research opportunities. 

How long we will keep your information
Your survey submission will be kept indefinitely, including your email address, but we will not contact you unless you signed up for an email list or notifications. 

How secure is my data
We use a highly reputed company called QuestionPro for our survey data collection and storage. When we export data for analysis in other tools, the emails are removed. 

Mailing lists
We will not add you to our mailing list without your explicit permission, i.e. you will have to check a box to receive emails from us.  

Who to contact
For all questions related to surveys conducted by The Dry Eye Foundation, please contact survey@dryeyefoundation.org.
My email address

Why do we need this?
To send you a copy of your responses after you've finished. 

We will not add your email address to any mailing list or share it with anyone. We will, however, give you an opportunity at the very end of the survey to tell us whether you would like to receive more emails from us.