2023 Patient & Care Partner Support Group Member Survey

Questions marked with a * are required
Please take a few moments to let us know about your experience with the CLL Society Patient & Care Partner Support Group. Your feedback will allow us to demonstrate the value and impact of these groups, and call attention to ways in which we can improve the experience for you and other members of the CLL/SLL community. Thank you in advance for your time.
The primary CLL Society Support Group that I attend is:
If you attend more than one Support Group for meetings, please select the other Support Groups below: (Optional)
Please answer all questions, whether or not you are the patient.
Concerning Living with CLL/SLL:
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am more comfortable with my or the patient’s CLL or SLL diagnosis since attending my local CLL Society Support Group.
I feel more supported by a new network of friends whose lives also have been touched by CLL or SLL since attending my local CLL Society Support Group.
Concerning CLL/SLL Knowledge and Management: 
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I am more knowledgeable about CLL or SLL since attending my local CLL Society Support Group.
I am more involved in my or the patient’s CLL or SLL management since attending my local CLL Society Support Group.
I have changed the management of my or the patient’s CLL or SLL since attending my local CLL Society Support Group (i.e. different testing, treatments, or treatment teams).
Concerning the Primary Local CLL Society Support Group: 
Strongly Agree
Agree
Neutral
Disagree
Strongly Disagree
I would recommend my primary local CLL Society Support Group to other CLL or SLL patients and families.
I am pleased with the leadership and facilitation of my primary local CLL Society Support Group.
What webinar topics are you most interested in? Please rank your top choices with #1 being the most important.
Integrative Medicine Approaches in CLL – Including Supplements, Exercise, Lifestyle
Managing Side Effects of Common CLL/SLL Medications
Diagnosis, When to Treat, Common B Symptoms - Including Fatigue
Mental Health – Coping with Anxiety During Watch and Wait
Cardiovascular Concerns in CLL
Treatments in CLL - include newer options like pirtobrutinib, bispecifics, and CAR-T, include known side effects
General Immunity and CLL
COVID-19 and Other Infectious Diseases
ASH Research Highlights
Improving Communication with Your Healthcare Team
Palliative Care and Hospice
If not included above, what other webinar topics would you be interested in CLL Society hosting?
If you are interested in attending a CLL-focused support group that is organized around a shared characteristic, please select all that apply below.
Please select your preference about scheduling some of your support group meetings in-person.
Which best describes your role with CLL or SLL? Please select all that apply:
What is your age?
What is your gender?
Please specify your race and ethnicity; select all that apply:
Please provide any additional comments or feedback you would like to share with CLL Society:

Please note, all comments are anonymous unless you wish to include your name and contact information.

      
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