32. I would like to share more about my diagnoses (optional)
02/28/2021 102532371 Not getting help from doctors. Not a corneal specialist or dry eye specialist. Will not look beyond Sicca.
02/28/2021 102520970 I need to learn more about corneal neuralgia and talk to my doctor about this.
02/26/2021 102406585 I have Sjogrens Disease
02/26/2021 102366559 Suffer from keratonconus. Corneal transplant in left eye over 30 years ago. Condition stops getting worse after 45/50 years old. I am 74.
02/25/2021 102226919 I go to one the top Ophthalmologist Specialist in the US. I am sure he has diagnosed me with something. I try not to get caught up on titles. At the end of the day, it gives you a reason to worry about something else. He says, "Your eyes are dry like the Sahara Desert." I say, how are we going to combat it. Then together we came up with a list I can live with other than Restasis and other prescriptions.
02/23/2021 101889717 I also have either scar tissue, or eye muscle on sclera in left eye on nasal side. It's silly that I don't know what the red raised tissue is, but specialists have given me conflicting information. This happened during a botched surgery for strabismus when I was a child.
02/21/2021 101634149 Tied to Sjogren's Syndrome.
02/21/2021 101603311 Without scleral lenses I cannot function normally. They keep me from being totally unable to use my eyes for any prolonged work (> 1hour)
02/20/2021 101579517 Also have mild RA
02/19/2021 101516159 Sjogren's Syndrome was discussed for a time and now seems to be the number one culprit.