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What did you want to get from today’s information day?
 
Information
 
Meet others with CLL
 
Support
 
Other
 

 
 
 
CLL Patient/Carer
 
CLL patient
 
CLL Carer

 
 
 
Where are you on your CLL journey
 
Watch & Wait
 
In 1st treatment
 
Post 1st treatment
 
Facing treatment for 2nd or more times
 
On a Clinical Trial
 
Not applicable
 
 
 
What makes living with CLL difficult (Select all that apply)?
 
Fatigue
 
Infections
 
Sweats
 
Bruising
 
Stomach pain
 
Aching bones
 
Weight loss
 
Side effects of treatment(s)
 
Swollen lymph nodes
 
Feeling anxious
 
Feeling down or depressed
 
Feeling helpless or fearful
 
Impact on family
 
Impact on social life
 
Work difficulties due to CLL
 
Financial difficulties due to CLL
 
Worries about the future
 
Worries about treatment options
 
Finding relevant, reliable or up-to-date information
 
Other
 

 
 
 
How did you hear about the event?
 
Hospital Visit
 
Daffodil Centre
 
Nurseline
 
Facebook
 
Friend told me
 
Doctor Visit
 
Cancer Support Centre
 
Poster / Leaflet
 
Twitter
 
Other
 

 
 
 
What did you think about what our speakers had to say?
 
Very helpful
 
Mostly helpful
 
Not helpful at all
 
 
 
Did you think there was enough time for questions
 
Yes
 
No
 
 
 
What were the useful topics that were discussed today
   
 
 
 
Was there anything else that you would liked to have discussed today?
   
 
 
 
What did you think about the breakout session?
 
Very helpful
 
Mostly helpful
 
Not helpful at all