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Ovarian Cancer Risk Perceptions in College-Aged Women
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Thank you for your interest and assistance. We are conducting research into the perceptions of women regarding their the risk of developing ovarian cancer. We truly appreciated your contribution and have designed the survey in such a way that will take less than five minutes.

Your answers may provide important information for healthcare providers working to prevent and treat ovarian cancer.

This research is part of a larger student-initiated project and is sponsored by the UAB School of Health Professions, Department of Health Services Administration.
 
 
If you would like to view the detailed protocol information, including the name and contact information and the investigator and UAB Institutional Review Board, select 'View Protocol Information' below. To begin the survey, choose Begin Survey...
 
View Protocol Information
 
Begin Survey
 
 
 
TITLE OF RESEARCH: Ovarian Cancer Risk Perceptions in College-Aged Women
IRB PROTOCOL NO.: E160217006
INVESTIGATOR: Ashley Crowe
SPONSOR: UAB Health Services Administration

We are asking you to take part in a research study. This research study will collect information and investigate the perceptions of risk of ovarian cancer in college-aged women.

Although you may not benefit directly from taking part in this study, the findings of the result may provide information that is important to understanding how college-age women understand and process the risk of developing ovarian cancer.

This is a pilot study of females at the University of Alabama at Birmingham.

If you choose to participate, you will complete a survey regarding your opinions and perceptions of the risks of ovarian cancer. We expect the survey will take less than 10 minutes to complete. There will be not cost or compensation for taking part in the study. If your email address was used to send the invitation to participate, the investigator cannot link your responses to anything that would identify you.

Your participation is completely voluntary. Whether or not you take part in this study is your choice. There will be no penalty if you decide not to be in the study. If you decide not to be in the study, you will not lose any benefits you are otherwise owed. You are free to withdraw from this research study at any time. Your choice to leave the survey without completing it will not affect your relationship with this institution. It will not be reported to any faculty member, instructors, or course professors whether or not you participated or if you began the survey and withdrew.

Taking part in this research is not a part of your UAB class work or duties. You can refuse to enroll, or withdraw after enrolling at any time with no effect on your class standing, grades, or job at UAB. You will not be offered or receive any special consideration if you take part in this research.

If you have any questions, concerns, or complaints about the research, you may contact Ashley Crowe ([email protected]) or Dr. Bryan Breland ([email protected]). We will be glad to answer any of your questions.

If you have questions about your rights as a research participant, or concerns or complaints about the research, you may contact the UAB Office of the IRB (OIRB) at (205) 934-3789 or toll free at 1-855-860-3789. Regular hours for the OIRB are 8:00 a.m. to 5:00 p.m. CT, Monday through Friday. You may also call this number in the event the research staff cannot be reached or you wish to talk to someone else.
 
 
 
What is your ethnicity?
 
Hispanic or Latino
 
Not Hispanic or Latino
 
 
 
What is your race?
 
American Indian or Alaska Native
 
Asian
 
Black or African American
 
Native Hawaiian or Other Pacific Islander
 
White

 
 
 

Are you currently enrolled in an academic program leading to a degree?
Please note that  enrolled does not mean you are necessarily registered for a class this term)

 
No
 
Yes, I am enrolled in an undergraduate program
 
Yes, I am enrolled as a graduate student
 
 
 
Your current age:
   
 
 
 
What is your gender?
 
Female
 
Male (Exit the survey)
 
Please indicate HOW LIKELY YOU THINK the following are:
Very Likely Likely Don't Know Not Likely Highly Unlikely
How likely do you think it is that you will develop ovarian cancer in your lifetime?
How likely do you think it is that the average female will develop ovarian cancer in her lifetime
 
 
 
More likely As likely Less likely
So, compared to the average woman your age, would you say that you are more likely to be diagnosed with ovarian cancer, less likely, or about as likely?
 
 
 
When would you say the risk of ovarian cancer is the highest - when you're under 40 years old, between 40 and 60 years old, or over 60 years old?
 
Under 40 years old
 
Between 40 and 60 years old
 
Over 60 years old
 
 
 
Very Familiar Familiar Not Very Familiar Not Familiar At All
How familiar are you with the signs and symptoms of ovarian cancer?
 
 
 
Very Often Often Rarely Never
How regularly do you make routine visits to your gynecologist?
During visits, how often does the gynecologist discuss ovarian cancer with you?
 
 

Generally, do you strongly agree, agree, disagree, or strongly disagree with the following statements regarding ovarian cancer?
Strongly Agree Agree Don't Know Disagree Strongly Disagree
I would rather not know my chance of getting ovarian cancer.
Women with ovarian cancer would have pain or other symptoms prior to being diagnosed.
Getting checked regularly for ovarian cancer increases the chances of finding cancer when it's easy to treat.
If experts had conflicting opinions about a medical test or treatment for ovarian cancer, I would still be willing to try it.
I will likely be more concerned about ovarian cancer as I get older.
 
 
How often do you worry about getting the following types of cancer?


Never Rarely Often Very Often
Any type of cancer
Lung
Breast
Skin
Ovarian
 
Mutations in specific genes indicate a significantly increased risk for ovarian cancer. Presence of the mutation can be clinically identified through genetic testing.
Very Likely Likely Not Likely Highly Unlikely
How likely would you being willing to be tested for the gene mutation?
 
 
Having the gene mutation makes ovarian cancer more likely to occur, but does not mean that you will develop ovarian cancer.

Were you determined to have the gene mutation, consider how it might affect your approach to preventing ovarian cancer...



How much do you agree or disagree this the following statements?
Strongly Agree Agree Disagree Strongly Disagree
­Finding out that I carry the gene mutation would likely have little impact on my prevention strategy.
Finding out that I carry the gene mutation would likely cause me to monitor for signs and symptoms more closely.
Finding out that I carry the gene mutation would likely cause me to take immediate and aggressive action, including clinical therapy or surgery.
 
Having a family history of ovarian cancer is associated with increased risk for ovarian cancer.


Very Familiar Familiar Not Very Familiar Not Familiar At All
How familiar are you with your family’s medical history, including occurrence of ovarian cancer?
 
 
Having a family history of ovarian cancer makes ovarian cancer more likely to occur, but does not mean that you will develop ovarian cancer.


If it was discovered that you had a family history of ovarian cancer, consider how it would change your approach to preventing ovarian cancer.


How much do you agree or disagree with the following statements?


Strongly Agree Agree Disagree Strongly Disagree
­Finding out that I had a family history of OC would likely have little impact on my prevention strategy.
­ Finding out that I had a family history of OC would likely cause me to monitor for signs and symptoms more closely.
­ Finding out that I had a family history of OC would likely cause me to take immediate and aggressive action, including clinical therapy or surgery.