This study is being conducted by the Department of Public Health at Oregon State University. It is for research purposes only. Your participation is confidential. Your name and information will NOT go on a mailing list or be passed on to other organizations. We are conducting a survey of men age 18-40 about their knowledge and perceived health benefits regarding prostate cancer and breast cancer. The survey takes approximately 20 minutes to complete, and all participants who complete the survey are eligible to enter a drawing for one of two $50 cash prizes. Only participants who complete the survey by June 5, 2004 will be eligible to enter the drawing.
If you are interested in participating, please enter your confirmation number, and then click "Continue".
Note: Your confirmation number can be found in the invitation you received to participate in this study. Your confirmation number is a unique 5 digit code, and is used to confirm your eligibility for the $50 cash prize drawing.
Informed Consent
Study Title: Prostate & Breast Cancer Survey
Principal Investigator: Rebecca J. Donatelle, PhD, Department of Public Health
Student Researcher: Brian K. Johnson, Department of Public Health
PURPOSE
This is a research study. The purpose of this research study is to explore the knowledge and health beliefs of men between the ages of 18 and 40 regarding prostate cancer, and breast cancer in women. The purpose of this consent form is to give you the information you will need to help you decide whether to be in the study or not. Please read the form carefully. You may ask any questions about the research, what you will be asked to do, the possible risks and benefits, your rights as a volunteer, and anything else about the research or this form that is not clear. To do so, simply call 1-877-221-8424 or email [email protected]. When all of your questions have been answered, you can decide if you want to be in this study or not. This process is called "informed consent". You may print a copy of this form for your records.
We are inviting you to participate in this research study because you are an adult male between the ages of 18 and 40 years old. Approximately 500 men like you will participate in this study.
PROCEDURES
If you agree to participate, your involvement will last for approximately 20-30 minutes. Once you agree to participate in this study, you will complete an on-line survey. Once you have completed this survey, you will have completed your involvement in this study.
RISKS
Risks to participants in this research will be minimal. The greatest risk to participants is loss of confidentiality or possible embarrassment or distress due to others knowing of your participation in this research. In addition, you may worry that your answers on the survey are incorrect.
BENEFITS
There may be no personal benefit for participating in this study. However, the researchers anticipate that, in the future, society may benefit from this study by a greater understanding of the current level of awareness among men about prostate, testicular and breast cancers. Such knowledge may suggest areas in which health promotion and education efforts could be enhanced or might be better directed.
COSTS AND COMPENSATION
You will not have any costs for participating in this research project, and you will not be compensated for participating in this research project. If you choose, you may enter a drawing for a $50 cash prize at the end of this survey. All participants who complete the survey by June 5, 2004, will be eligible to receive the $50 cash prize.
CONFIDENTIALITY
Records of participation in this research project will be kept confidential to the extent permitted by law. However, federal government regulatory agencies and the Oregon State University Institutional Review Board (a committee that reviews and approves research studies involving human subjects) may inspect and copy records pertaining to this research. It is possible that these records could contain information that personally identifies you. In the event of any report or publication from this study, your identity will not be disclosed. Results will be reported in a summarized manner in such a way that you cannot be identified.
VOLUNTARY PARTICIPATION
Taking part in this research study is voluntary. You may choose not to take part at all. If you agree to participate in this study, you may stop participating at any time. You are free to skip any questions that you would prefer not to answer. If you decide not to take part, or if you stop participating at any time, your decision will not result in any penalty or loss of benefits to which you may otherwise be entitled.
QUESTIONS
Questions are encouraged. If you have any questions about this research project, please contact: Brian K. Johnson, at 1-877-221-8424 or email [email protected]. If you have questions about your rights as a participant, please contact the Oregon State University Institutional Review Board (IRB) Coordinator, at (541) 737-3437 or by e-mail at [email protected] or by mail at 312 Kerr Administration Building, Corvallis, OR 97331-2140.
By clicking "I agree" below, you are indicating that you have read the above consent statement, that your questions have been answered, and that you agree to take part in this study. You may print a copy of this form by clicking the print button on your Internet browser.
How old are you?
Are you a doctor or a nurse?
Have you ever been tested for prostate cancer?
Have you ever been diagnosed with prostate cancer?
To your knowledge, has a friend or family member ever been tested for prostate cancer?
If yes, what is the person(s) relationship to you? (select all that apply)
To your knowledge, has a friend or family member ever been diagnosed with prostate cancer?
If yes, what is the person(s) relationship to you? (select all that apply)
To your knowledge, has a friend or family member ever been tested for breast cancer?
If yes, what is the person(s) relationship to you? (select all that apply)
To your knowledge, has a friend or family member ever been diagnosed with breast cancer?
If yes, what is the person(s) relationship to you? (select all that apply)
Are you currently: (select all that apply)
Which of the following includes your TOTAL family income in the year 2003 before taxes?
What is the last grade of school or year of college you completed?
Are you of Hispanic or Latino Heritage?
Would you say that in general your health is:
Do you have any kind of health care coverage, including health insurance, prepaid plans such as HMOs or government plans such as Medicare?
How much do you weigh? (please specify in pounds)
About how tall are you without shoes? (please specify in feet and inches)
If you had questions about prostate cancer, how much would you trust the following sources to help answer your questions?
If you had questions about breast cancer, how much would you trust the following sources to help answer your questions?
Have you ever discussed prostate cancer with the following individuals?
Have you ever discussed breast cancer with the following individuals?
Who helps you to make health care decisions, if anyone? (select all that apply)
Where do you usually get information on health-related issues? (select all that apply)
Please rate how likely you believe the following to be:
In the past 6 months, have you read, seen or heard anything about prostate cancer?
In the past 6 months, have you read, seen or heard anything about breast cancer?
Do you have a prostate gland?
What is the prostate gland's function (what does it do)?
On a scale from one to ten, with one being not at all knowledgeable, and 10 being extremely knowledgeable, how knowledgeable do you think you are about:
In the last 12 months, how often have you...
For each of the following factors, how likely do you believe they are to increase a man's risk of developing prostate cancer?
For each of the following factors, how likely do you believe they are to increase a woman's risk of developing breast cancer?
According to the American Cancer Society, at what age should:
Please read each statement, and indicate whether you believe the statement is true or false.
Please read each statement, and indicate whether you believe the statement is true or false.
My discussing prostate cancer with others will / would:
My having a preventative examination on a regular basis will / would:
Please rate your opinion of how good or bad the following would be for you:
If the following events or conditions were to happen to you, how serious do you believe each would be for you personally?
Thank you for participating in this research project.
You are now eligible to enter in the $50 Cash Prize Drawing. Two eligible participants will be randomly selected to receive a $50 cash prize.
To enter in the drawing, please provide your name and contact information. This information will be used to contact you in the event you are selected to receive the $50 cash prize. This information will not be shared with others, and you will not be placed on a mailing list.
You must agree to abide by the rules on this page to continue to be eligible for the prize.
Rules
1. You may only enter the contest once, after completing the survey.
2. This contest is not valid where not legal.
3. Winners will be selected by placing all received entries in a box, and picking two at random.
4. Odds of winning will depend upon how many people take the survey by the closing date of the contest (June 5, 2004).
5. Winners will be notified by mail during the week of June 7-11, 2004.
6. If an entry is deemed to be suspicious, or fraudulent or in violation of any of the rules in any way, it will be rejected.
7. The judge's decision is final, and no correspondence will be entered into regarding their decisions.
8. Prizes will be awarded by check.
9. Only one entry is eligible per household.
10. We are not responsible for erroneous, incomplete, lost or stolen entries or prizes. We are not responsible for entries affected by network or computer errors.
11. Only individuals residing in the USA are eligible for entry.
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