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Project Scleroderma Educational Study
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To our Project Scleroderma Community,

Project Scleroderma’s vision and commitment to the Scleroderma community does not begin and end with the production of the documentary film, “Beneath The Surface”. Rather, the film is just the first step in an extensive plan we have created that will support Scleroderma patients going forward. Our organization’s mission is to not only raise the level of awareness for this disease but also to create a bridge to products and services that will help support the specific requested needs of the Scleroderma patient community.


Project Scleroderma is conducting an educational study to help determine exactly what your needs as Scleroderma patients are. Our goal is to facilitate communication between pharmaceutical companies, researchers and physicians who specialize in Scleroderma and you who are living with this disease. Our communication will focus on product availability, new technology and any other services or information that could be of benefit to you as a Scleroderma patient.


The benefits of participating in this study are:

- Continual updates on all the latest product information, tips and services or opportunities for clinical trials.
- Access to new products and services.
- Access to the results of this study.

Participation in the study is completely voluntary. If you would prefer to fill out this survey anonymously, we 100% respect your privacy.

If you would be more comfortable to participate anonymously, no problem, we are just happy to have your input. However, by providing your email address and contact information you will be added to our mailing list, allowing us the opportunity to keep you updated on all of the latest product information we receive from the pharmaceutical companies, researchers and physicians who specialize in Scleroderma treatment and care.

Here is a link to the survey:

This link is uniquely tied to this survey and your email address. Please do not forward this message.


Thank you for your participation!

Sincerely,

Christy McCaffrey
Executive Director of Project Scleroderma
 
 
 
First Name : 
Last Name : 
Address 1 : 
Address 2 : 
City : 
State : 
Zip : 
Phone : 
Email Address : 
 
 
 
* Please indicate your gender.
 
Male
 
Female
 
Prefer not to answer
 
 
 
* Which range includes your age?
 
Younger than 18
 
18 - 24
 
25- -34
 
35 - 44
 
45 - 54
 
55 - 64
 
65 or older
 
Prefer not to answer
 
 
 
* How long have you been a customer?
 
Less than 6 months
 
6 months to less than 1 year
 
1 year to less than 3 years
 
3 years to less than 5 years
 
5 years or more
 
 
 
* What products/services of ours do you use?
 
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{PRODUCT/SERVICE 5}
 
Other
 

 
 
How frequently do you purchase our products/services?
Don't purchase Once a year or less Every 7-12 months Every 2-6 months Once a month Every 2-3 weeks Once or more a week
* {PRODUCT/SERVICE 1}
* {PRODUCT/SERVICE 2}
* {PRODUCT/SERVICE 3}
* {PRODUCT/SERVICE 4}
* {PRODUCT/SERVICE 5}
 
 
 
Please describe your experience.