The Cholangiocarcinoma Foundation Case Study

CCF needed a survey platform that could deliver speed, sensitivity, and robust data security.

Overview

The Cholangiocarcinoma Foundation (CCF) is a global leader in supporting patients and researchers confronting cholangiocarcinoma, a rare and aggressive bile duct cancer. Through advocacy, education, and funding, CCF is dedicated to elevating the patient voice in oncology research and policy. To achieve this, CCF relies on timely, accurate data, making the choice of survey technology a critical factor in their mission.

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Objective

CCF aimed to rapidly collect actionable insights from a diverse patient population regarding the barriers to participating in dose-finding oncology trials (DFOTs). These trials are vital for developing safe, effective cancer therapies, but recruiting patients with rare conditions presents unique challenges. CCF needed a survey platform that could deliver speed, sensitivity, and robust data security, without compromising on user experience or compliance.

Challenges

CCF’s research initiative faced several key hurdles:

• Speed: Only a few weeks to design, deploy, and analyze the survey.
• Sensitivity: Addressing deeply personal and logistical barriers faced by patients with rare cancers.
• Data security: Ensuring HIPAA and GDPR compliance for sensitive patient health information.

How QuestionPro delivered

1. Advanced survey logic & personalization
   • Over 30 advanced branching and skip logic rules enabled CCF to tailor the survey experience to each respondent, ensuring relevance and sensitivity.
   • Personalized survey flows resonated with patients’ unique journeys, resulting in increased engagement and improved data quality.
2. Robust data security & compliance
   • 100% HIPAA and GDPR compliance, ISO 27001:2022 certification, and enterprise-grade security protocols protected sensitive patient data and maintained trust.
3. Mobile-optimized, accessible surveys
   • Seamless cross-platform functionality allowed over 85% of respondents to complete the survey on mobile devices, making participation easy and accessible anywhere.
4. Real-time analytics & actionable insights
   • Live dashboards and AI-powered analytics enabled CCF to monitor participation, track completion rates, and surface insights as responses were received, thereby accelerating research and decision-making.
5. Automated Engagement Tools
   • Built-in reminders and follow-up tools boosted response rates to nearly 90% among those who started the survey, maximizing data collection within a tight timeline.
6. Effortless Scalability
   • Unlimited surveys and responses, multilingual support, and customizable branding enabled CCF to focus on patient engagement and research impact, rather than technical limitations.

About QuestionPro

QuestionPro is an enterprise-grade platform, developed for two decades in close alignment with the needs of our customers in experience management, market research, and scientific research. With over 4 million users across 100+ countries, QuestionPro is one of the most trusted survey and analytics solutions worldwide. Our expertise spans Market Research, Customer Experience, and Employee Experience, providing tools that support agile, high-quality research initiatives at every scale.